Erin’s Story
My name is Erin, 28 years old, and from Regina, SK. I’ve had epilepsy since was 21 years old, and continue to fight on this journey.
My main struggles I’ve had with my disorder is getting people to understand how this effects my life (personal & work related) because my brain thinks differently from any other individuals my age. Memory issues have been an issue for me. Being able to remember some information has been a challenge, which resulted to be let go from four jobs which I went to school for Office Administration at Saskatchewan Polytechnic in Regina.
With regards to medications and my physical health, I always feel drowsy to the point I can have a three hour nap after work and still feel exhausted. I do have moments of dizziness, but overall medications do keep me on my feet and seizure free.
I have made mistakes in the past, thinking since I haven’t had seizures in a long period of time I can go back to my old habits like I was before I was pre-diagnosed (drinking alcohol, less than 5 hours of sleep, and not taking medications). However, due to my bad choices came with consequences.
In October of 2021, I had a miscommunication with my neurologist regarding medication adjustments, that resulted to a car accident. I had a seizure behind the wheel, and all I remember one minute feeling dizzy and next I wake up upside down realizing that I flipped the car. I’m not proud of the choices I made that day, however, I am happy I didn’t hurt anyone in the situation. After the accident, I was put on medical suspension for six months, and was taking the bus to work. I knew right then and there that I needed to take my epilepsy more serious or could result to worse situations for myself and others. I’ve been using an alarm clock on my phone for every 12 hours to take my medication on time, getting enough sleep, make sure I am not going without eating (even made diet changes recently), and watch my stress and anxiety issues. I am taking another type of medication for my generalized anxiety disorder, and I’m glad I have something that works very well for both my seizures and anxiety issues. I always say to myself if that accident didn’t scare or inspire me to get better, nothing well. I am very glad I still keep myself motivated to be better, not only for myself but for my two nephews who mean to the world to me!
I’ve been waiting to see if there’s possibilities for possible surgeries or procedures, however, my neurologist hasn’t mentioned any since my seizures aren’t as severe as other people with epilepsy. I’ve had Sleep Deprived EEG tests, and MRI but only show a discharge that bursts on the one side of the brain, and MRI showed no issues. It is a little frustrating, but all I can do is hope for possibilities for ways to end this fight.
The one thing I always wish for when it comes to my invisible disorder, is that anyone can find a cure suitable for me and potentially other people who go through the same thing. Every year around this time, I always wish for a cure and to feel free again! I wouldn’t change anything for the world, because I wouldn’t be who I am today if I didn’t have epilepsy. Made me stronger & tough. It’s inspired me to be a better person, and lead by example for my friends, family (especially my nephews), and any other person in my shoes. I do hope for a cure in the future, but until then I’ll keep fighting until the end. I am 1 year and almost 5 months seizure free, life time to go!
- Erin; Epilepsy Warrior
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