Jeremie’s Story

Meet Jeremie.

Jeremie is one amazing strong,very kind, beautiful very brave little human at only 7 years old he's had quite a journey for a little boy.

Jeremie had his first seizure at the age of 1 and many more after, with some days of having multiple seizures a day turning into multiply kind of seizures he was officially diagnosed with Epilepsy at the age of 4, and from there came all the doctors appointments .. EEGs, MRI, SCAN, follow-ups, Bloodwork, Ambulance ride, emergency visits, medications upon medications with sadly LOTS of side effects and a lot of missed school and events. Epilepsy is much more than seizures, we're learning this slowly and trying to adapt to our new life everyday, every day is a learning curve.

We have absolutely no idea where his journey will bring us but as a family learning to be strong everyday to be his voice and to be his strength when he needs it, this is something we will keep on doing for life . Epilepsy awareness is so important it can happen to anyone in this world, The first seizure is absolutely scary and traumatizing as a parent as it changes everything , the guilt of knowing his childhood was taken away from him from having a normal life is a feeling I wouldn't wish that upon anyone. As a family we will keep on fighting for more awareness to fight for him and others living with epilepsy !

Till than Jeremie will keep on riding his bike in the summer or hide from the cold in the winter till his next seizure hits ! We are currently 1 month seizure free and were hoping to be adding a new emotional support friend for him to hug and kiss for those days where he feels sad from being different from all the other boys at school, with time our wish is for jeremie to never feel ashamed of who he is because of his epilepsy and to be able to somewhat have a "normal" life with great friends , Im proud to say that his support team over the years have been truly amazing, It's heart warming to know he has met some extremely beautiful people over the years who truly love him for who he is even on his hardest days , building his self esteem up one day at a time so he can one day know that epilepsy will never define him.

We love you so much j.bear we will never stop fighting for you coco, we will always be with you to support you with this journey, in front or behind you for ever !

Nous t'aimons gros mon grand , Maman Daddy Annabelle xxx