"Let’s make a difference to people and families coping with seizures. Let’s get funds for research and awareness. Remember Jovi by making a donation. We can’t change the past but we can change the future."
A sibling's early passing from SUDEP results in a heartfelt call to action:
It wasn’t until his mid-thirties that Jovi had his first seizure.
He was with friends who initially thought he was kidding around until it was obvious it was something far more serious. He hid this from the family as he wasn’t sure what it was and if it would ever happen again…until it happened again. This time it was in a car with my mum driving. It was shocking and scary. She had no idea what was happening or what to do. She was literally screaming for help in the middle of a busy roadway. After the paramedics and the doctors’ appointments, he was formally diagnosed with epilepsy by our family doctor. Although he had seizures very infrequently and found the right medication to help control them, it was worrying.
Without warning, everything changed! Sunday, October 18th 2015 started like any peaceful Sunday but ended with misery and heartbreak. Jovi was in the safest place in the world. After a morning of talking with mum and catching up, he was relaxing in his room as was his routine. Mum was busy cooking and wondering when he was going to come downstairs to eat, which was always her routine. Unbeknownst to her, Jovi would not come down; he had a massive seizure and within a couple of minutes, passed away.
The rest of the day was a nightmare from which none of us have fully recovered. Jovi was a wonderful son, a loving brother, a cousin, nephew, colleague and friend. Now he is missed by all who knew him.