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INTERNET LINKS


Where Can I Find Information on the Internet About Epilepsy?

Canada 
  • There are two Epilepsy-related mailing lists: "Epilepsy-List" is intended for general discussions about Epilepsy and seizure disorders. Most traffic is from people living with Epilepsy or their friends and family. The companion list, "Epilepsy-PRO" is intended for discussions about Epilepsy and seizure disorders by professionals working in this field. To find out about these lists, send mail to listserv@calvin.dgbt.doc.ca and include the command lines "info epilepsy-list" and/or "info epilepsy-pro."
  • Montreal Neurological Institute
    http://www.mcgill.ca/mni/epilepsy.html
  • London Health Science Centre
    http://www.lhsc.on.ca/eeg/

United States 

International

 

BOOKS


Some Books Available on Epilepsy

  • A GUIDE TO UNDERSTANDING AND LIVING WITH EPILEPSY, Orrin Devinsky, MD. F.A. Davis Company (1915 Arch Street, Philadelphia, PA 19103), 1994.
  • BECKY THE BRAVE: A STORY ABOUT EPILEPSY by Laurie Lears, Illustrated by Gail Piazza, Albert Whitman & Company www.albertwhitman.com, 2002.
  • THE BRAINSTORMS COMPANION: EPILEPSY IN OUR VIEW, by Steven Schachter, MD. Raven Press (1185 Avenue of the Americas, NY, NY 10036), 1994.
  • BRAINSTORMS: EPILEPSY IN OUR WORDS, by Steven Schachter, MD. Raven Press (1185 Avenue of the Americas, NY, NY 10036), 1993.
  • CHALLENGE OF EPILEPSY by Sally Fletcher. Aura Publishing Company (Aura Publishing Company; 20 Sunnyside Ave., #A150, Mill Valley, CA 94941).
  • CHILDREN WITH EPILEPSY: A PARENTS GUIDE, by Helen Reisner. Woodbine House (5615 Fishers Lane, Rockville, MD 20852), 1988.
  • DOES YOUR CHILD HAVE EPILEPSY? by J.E. Jan, MD, R.G. Ziegler, MD, G. Erba, MD. University Park Press, 2nd Edition, 1991.
  • EPILEPSY: A NEW APPROACH; WHAT MEDICINE CAN DO, WHAT YOU CAN DO FOR YOURSELF by Adrienne Richard and Joel Reiter, MD. Walker Publishing (New York), 1995.
  • THE EPILEPSY DIET TREATMENT: AN INTRODUCTION TO THE KETOGENIC DIET, 2nd Edition by John Freeman, MD, Millicent Kelly, and Jennifer Freeman. Demos Publications (156 Fiftth Ave, NY, NY 10010; 1-800-532-8663), 1995.
  • EPILEPSY PATIENT & FAMILY GUIDE, 2nd Edition by Orrin Devinsky, MD, F.A Davis Company www.fadavis.com (1915 Arch Street, Philadelphia, PA 19103) 2002.
  • HAVING EPILEPSY, THE EXPERIENCE AND CONTROL OF ILLNESS by Joseph Schneider and Peter Conrad. Temple Univ. Press (Broad and Oxford Streets, Philadelphia, PA).
  • LIVING WELL WITH EPILEPSY by Robert J. Gumnit, MD. Demos Publications, Ave, (156 Fiftth Ave, NY, NY 10010; 1-800-532-8663), 1988.
  • ONE MIRACLE AT A TIME, HOW TO GET HELP FOR YOUR DISABLED CHILD - FROM THE EXPERIENCE OF OTHER PARENTS, by Irving Dickman. PACER Center, Inc (4826 Chicago Ave, Minneapolis, MN 55417).
  • PSYCHOPATHOLOGY IN EPILEPSY, SOCIAL DIMENSIONS by Steven Whitman and Bruce Hermann. Oxford University Press (16-00 Pollitt Drive, Fair Lawn, NJ 07419-2799).
  • REJOICE IN THE LIGHT: A WOMAN’S JOURNEY OUT OF THE MYSTERY OF EPILEPSY by Amy E. Crane, M Ed., Agape Publishing (P.O Box 4203, Greenville, SC 29608) 2000.
  • SEIZURES AND EPILEPSY IN CHILDHOOD: A GUIDE FOR PARENTS by John Freeman, MD, Eileen Vining, MD and Diana Pillas, The Johns Hopkins University Press (701 West 40th St, Baltimore, MD 21211), 1990.
  • TREATING EPILEPSY NATURALLY: A GUIDE TO ALTERNATIVE AND ADJUNCT THERAPIES by Patricia A. Murphy, McGraw Hill, 2002.

 

RESOURCES


Canadian Epilepsy Database & Registry (CEDAR)

CEDAR is a Windows-based program which has been distributed to about 25 selected epilepsy centres across Canada for use by adult and pediatric neurologists and members of the Canadian League Against Epilepsy (CLAE - http://www.clae.org). Its purpose is to establish a national database for research projects, while providing a useful office program for the management of epilepsy patients.

 

INFORMATION / SERVICES


TREATMENT CENTRES FOR EPILEPSY ACROSS CANADA

ALBERTA

Alberta Children's Hospital
Marlene Blackman RN, Coordinator
Neurology Clinic
1820 Richmond Rd. South West
Calgary, Alberta T2T 5C7
Tel: (403) 943-7306
Hosp. tel: (403) 943-7211
Hosp. fax: (403) 943-7221
 Children
Foothills General Hospital
Maureen Robertson, Clinical Trials Coordinator
Epilepsy Clinic
1403 29th Street North West
Calgary, Alberta T2N 2T9
Tel: (403) 944-4329
Fax: (403) 944-4355
Hosp. Tel: (403) 944-1110
Neurology Dept. tel: (403) 944-1544
 Adults
University of Alberta Hospital
Daphne Quigley - Nurse Coordinator
Adult Epilepsy Program
4H1.03 Walter C. Mackenzie Centre
8440-112 Street
Edmonton, Alberta T6G 2B7
Tel: (780) 407-7077
Fax: (780) 407-6018
E-mail: epilepsy.clinic@ualberta.ca
Pager: (780) 445-2620
 Adults & Children
Glenrose Hospital
Ann Brown, Coordinator
Adult Convulsive Disorder Clinic
10230 111th Avenue North West
Edmonton, Alberta T5G 0B7
Tel: (780) 471-7910
Fax: (780) 471-7976
Hosp. tel: (780) 471-2262
 Adults


BRITISH COLUMBIA

Vancouver General Hospital
Janice Henrikson, Nurse Clinician
Seizure Surgery Clinic
VGH, Rm 218
Neurology Dept.
2775 Heather Street
Vancouver, British Columbia V5Z 1M9
Tel: (604) 875-5310
Tel: (604) 875-4403
Fax: (604) 875-5650
 Adults
BC Children's Hospital
Pediatric Neurology Dept. – Seizure Unit
4480 Oak Street
Vancouver, British Columbia V6H 3V4
Tel: (604) 875-2121
Fax: (604) 875-2292
 Children


MANITOBA

Health Sciences Centre
Lynn Carlson, Nurse Clinician
Epilepsy Clinic
820 Sherbrook Street
Winnipeg, Manitoba R3A 1R9
Tel: (204) 774-6511
Fax: (204) 787-1486
 Adults
Children's Centre
Rae Bradshaw – Clinic Coordinator
Paediatric Neurology
840 Sherbrook Street
Winnipeg, Manitoba R3A 1R9
Tel: (204) 787-4510
Fax: (204) 787-1922
Hosp. tel: (204) 787-2595
 Children


NEW BRUNSWICK

St-John Regional Hospital
Colleen Fry, Divisional Manager
Neurosurgery Department
St-John, New Brunswick E2L 4L2
Tel: (506) 648-6650
Fax: (506) 648-6649
Hosp. tel: (506) 648-6000
Hosp. fax: (506) 648-7957
Adults & Children


NEWFOUNDLAND

Janeway Child Health Centre
Sharon Penney – Nurse Coordinator
Pediatric Epilepsy
Room 1J322
300 Prince Philip Dr.
St-John's, Newfoundland A1B 3V6
Tel: (709) 777-4172
Fax: (709) 777-4361
Children
Health Sciences Centre
Janet Brown, Neurology clinic Coordinator
Neurology Department – Outpatient Clinic
300 Prince Philip Dr.
St-John's, Newfoundland A1B 3V6
Tel: (709) 777-7075
Tel: (709) 777-8557
Tel: (709) 777-6948
Fax: (709) 777-6656
Adults


NOVA SCOTIA

IWK Health Centre
Edie Smith, RN - Neurology Nurse Clinician
5850/5980 University Avenue
PO Box 9700
Halifax, Nova Scotia B3K 6R8
Tel: (902) 470-8472
Fax: (902) 470-8486
Hosp. Tel: (902) 470-8888
Children
Queen Elizabeth II Health Sciences Centre
Susan Rahey
Epilepsy Program
Room 3841, Halifax Infirmary
1796 Summer St
Halifax, Nova Scotia B3H 3A7
Tel: (902) 473-2136
Fax: (902) 473-4438
Adults


ONTARIO

McMaster University Medical Centre
Louise MacRae, office Manager
Regional Epilepsy and
Diagnostic Neurophysiology clinics
Neurology Department
HSC, room 4U8HSC, 4V1 Clinic
1200 Main Street West
Hamilton, Ontario L8N 3Z5
Tel: (905) 521-2100
Fax: (905) 521-2656
 Adults & Children
Kingston General Hospital
Epilepsy Clinic/Neurology
76 Stuart Street
Kingston, Ontario K7L 2V7
Tel: (613) 548-2342
Fax: (613) 548-6019
Hosp. tel: (613) 548-3232
 Adults & Children
London Health Sciences Centre
Christina Pickard -Epilepsy Research Coordinator
University Campus, Epilepsy Unit Investigation
Room 10P18
339 Windemere Road
London, Ontario N6A 5A5
Tel: (519) 685-8300 ext. 32870
Fax: (519) 663-3753
 Adults & Children
Ottawa General Hospital
Neurology Department
501 Smyth Road
Ottawa, Ontario K1H 8L6
Tel: (613) 737-8959
Fax: (613) 737-8857
 Adults
Children's Hospital of Eastern Ontario
Edgar Belanger RN, BScN
Neurology Clinic
401 Smyth Road
Ottawa, Ontario K1H 8L1
Tel: (613) 737-7600 ext. 2158
Fax: (613) 737-4879
 Children
Ottawa Civic Hospital
Jean Gauvreau – Clinic Coordinator
Department of Neurology
Room D-715
1053, Avenue Carling
Ottawa, Ontario K1Y 4E9
Tel: (613) 761-5353
Fax: (613) 761-5360
 Adults
Saint Michael's Hospital
Department of Neurology
Rondha Beck – Clinical Leader Manager
Cathy Berlingieri – Administrative Coordinator
30 Bond Street
Toronto, Ontario M5B 1W8
Tel: (416) 864-5759 / Beck
Tel: (416) 864-6000 ext: 2520 / Berlingieri
Fax: (416) 813-8105
 Adults
Hospital for Sick Children
Irene Elliott, Director
Epilepsy Clinic
555 University Avenue, Unit 60
Toronto, Ontario M5G 1X8
Tel: (416) 813-1500
Tel: (416) 813-6332
Fax: (416) 813-8105
 Children
Toronto Western Hospital
Nina Politzer, Nurse Coordinator
Epilepsy Clinic
Edith Cavell Wing 8-005
399 Bathurst Street, Fifth Floor
Toronto, Ontario M5T 2S8
Tel: (416) 603-5017
Lab: (416) 603-5044
Fax: (416) 603-5768
 Adults


QUEBEC

CHUM
Pavillon Notre-Dame

Micheline Gravel, RN
Département EEG
1560 Sherbrooke est
Montréal, Québec H2L 4K8
Tel: (514) 890-8237
Fax: (514) 412-7554
 Adults
Hôpital Ste-Justine
Dominique Chartrand
Coordonnateur Epilepsie Clinique
Clinique de Neurologie
3175 Côte Ste-Catherine
Montréal, Québec H3T 1C5
Tel: (514) 345-4894
Fax: (514) 345-4787
Hosp. Tel: (514) 345-4931
 Children
Montreal Children`s Hospital
Sandra Bérubé –Coordonnatrice
Neurology Department
2300, rue Tupper
Montréal, Québec H3H 1P3
Tel: (514) 412-4400
 Children
Montreal Neurological Institute and Hospital
Raula Ventzos, Coordinator Epilepsy Services
Epilepsy Clinic
3801 University
Montréal, Québec H3A 2B4
Tel: (514) 398-1976
Fax: (514) 398-9276
Hosp. Tel: (514) 398-6644
 Adults
Hopital l’Enfant Jésus
Département de Neurologie / Clinique d’Epilepsie
Pavillon L’Enfant Jésus-CHA
1401-18e Rue
Québec, Québec G1J 1Z4
Tel: (418) 649-0252 ext : 5980
 Adults
Centre Pédo-Psychiatrique
(anciennement Hôpital du Sacré-Cœur)

Roger Desbiens – Coordonnateur
1, avenue du Sacré-Cœur
Québec, Québec G1N 2W1
Tel: (418) 529-6851 ext : 300
 Children


SASKATCHEWAN

Royal University Hospital
Doris Newmeyer, RN
Division of Pediatric Neurology/Neurosurgery
103 Hospital Drive
Saskatoon, Saskatchewan S7N 0W8
Tel: (306) 966-8115
Adults & Children

Last update: December 2005


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