|
INTERNET LINKS
Where Can I Find Information on the Internet About Epilepsy?
|
Canada |
- There are two Epilepsy-related mailing lists:
"Epilepsy-List" is intended for general discussions
about Epilepsy and seizure disorders. Most traffic is from people
living with Epilepsy or their friends and family. The companion
list, "Epilepsy-PRO" is intended for discussions about
Epilepsy and seizure disorders by professionals working in this
field. To find out about these lists, send mail to listserv@calvin.dgbt.doc.ca
and include the command lines "info epilepsy-list"
and/or "info epilepsy-pro."
- Montreal Neurological Institute
http://www.mcgill.ca/mni/epilepsy.html
- London Health Science Centre
http://www.lhsc.on.ca/eeg/
|
|
|
BOOKS
Some Books Available on Epilepsy
- A GUIDE TO UNDERSTANDING AND LIVING WITH
EPILEPSY, Orrin Devinsky, MD. F.A. Davis Company (1915 Arch Street,
Philadelphia, PA 19103), 1994.
- BECKY THE BRAVE: A STORY ABOUT EPILEPSY by Laurie
Lears, Illustrated by Gail Piazza, Albert Whitman & Company
www.albertwhitman.com, 2002.
- THE BRAINSTORMS COMPANION: EPILEPSY IN OUR
VIEW, by Steven Schachter, MD. Raven Press (1185 Avenue of the
Americas, NY, NY 10036), 1994.
- BRAINSTORMS: EPILEPSY IN OUR WORDS, by Steven
Schachter, MD. Raven Press (1185 Avenue of the Americas, NY,
NY 10036), 1993.
- CHALLENGE OF EPILEPSY by Sally Fletcher.
Aura Publishing Company (Aura Publishing Company; 20 Sunnyside
Ave., #A150, Mill Valley, CA 94941).
- CHILDREN WITH EPILEPSY: A PARENTS GUIDE,
by Helen Reisner. Woodbine House (5615 Fishers Lane, Rockville,
MD 20852), 1988.
- DOES YOUR CHILD HAVE EPILEPSY? by J.E. Jan,
MD, R.G. Ziegler, MD, G. Erba, MD. University Park Press, 2nd
Edition, 1991.
- EPILEPSY: A NEW APPROACH; WHAT MEDICINE CAN
DO, WHAT YOU CAN DO FOR YOURSELF by Adrienne Richard and Joel
Reiter, MD. Walker Publishing (New York), 1995.
- THE EPILEPSY DIET TREATMENT: AN INTRODUCTION
TO THE KETOGENIC DIET, 2nd Edition by John Freeman, MD, Millicent
Kelly, and Jennifer Freeman. Demos Publications (156 Fiftth Ave,
NY, NY 10010; 1-800-532-8663), 1995.
- EPILEPSY PATIENT & FAMILY GUIDE, 2nd Edition by
Orrin Devinsky, MD, F.A Davis Company www.fadavis.com
(1915 Arch Street, Philadelphia, PA 19103) 2002.
- HAVING EPILEPSY, THE EXPERIENCE AND CONTROL
OF ILLNESS by Joseph Schneider and Peter Conrad. Temple Univ.
Press (Broad and Oxford Streets, Philadelphia, PA).
- LIVING WELL WITH EPILEPSY by Robert J. Gumnit,
MD. Demos Publications, Ave, (156 Fiftth Ave, NY, NY 10010; 1-800-532-8663),
1988.
- ONE MIRACLE AT A TIME, HOW TO GET HELP FOR
YOUR DISABLED CHILD - FROM THE EXPERIENCE OF OTHER PARENTS, by
Irving Dickman. PACER Center, Inc (4826 Chicago Ave, Minneapolis,
MN 55417).
- PSYCHOPATHOLOGY IN EPILEPSY, SOCIAL DIMENSIONS
by Steven Whitman and Bruce Hermann. Oxford University Press
(16-00 Pollitt Drive, Fair Lawn, NJ 07419-2799).
- REJOICE IN THE LIGHT: A WOMAN’S JOURNEY OUT OF
THE MYSTERY OF EPILEPSY by Amy E. Crane, M Ed., Agape Publishing
(P.O Box 4203, Greenville, SC 29608) 2000.
- SEIZURES AND EPILEPSY IN CHILDHOOD: A GUIDE
FOR PARENTS by John Freeman, MD, Eileen Vining, MD and Diana
Pillas, The Johns Hopkins University Press (701 West 40th St,
Baltimore, MD 21211), 1990.
- TREATING EPILEPSY NATURALLY: A GUIDE TO ALTERNATIVE
AND ADJUNCT THERAPIES by Patricia A. Murphy, McGraw Hill, 2002.
RESOURCES
Canadian Epilepsy Database & Registry (CEDAR)
CEDAR is a Windows-based program which has
been distributed to about 25 selected epilepsy centres across
Canada for use by adult and pediatric neurologists and members
of the Canadian League Against Epilepsy (CLAE - http://www.clae.org).
Its purpose is to establish a national database for research
projects, while providing a useful office program for the management
of epilepsy patients.
INFORMATION / SERVICES
TREATMENT CENTRES FOR EPILEPSY ACROSS CANADA
ALBERTA
Alberta Children's Hospital
Marlene Blackman RN, Coordinator
Neurology Clinic
1820 Richmond Rd. South West
Calgary, Alberta T2T 5C7 |
Tel: (403) 943-7306
Hosp. tel: (403) 943-7211
Hosp. fax: (403) 943-7221 |
Children |
Foothills General Hospital
Maureen Robertson, Clinical Trials Coordinator
Epilepsy Clinic
1403 29th Street North West
Calgary, Alberta T2N 2T9 |
Tel: (403) 944-4329
Fax: (403) 944-4355
Hosp. Tel: (403) 944-1110
Neurology Dept. tel: (403) 944-1544 |
Adults |
University of Alberta Hospital
Daphne Quigley - Nurse Coordinator
Adult Epilepsy Program
4H1.03 Walter C. Mackenzie Centre
8440-112 Street
Edmonton, Alberta T6G 2B7 |
Tel: (780) 407-7077
Fax: (780) 407-6018
E-mail: epilepsy.clinic@ualberta.ca
Pager: (780) 445-2620 |
Adults & Children |
Glenrose Hospital
Ann Brown, Coordinator
Adult Convulsive Disorder Clinic
10230 111th Avenue North West
Edmonton, Alberta T5G 0B7 |
Tel: (780) 471-7910
Fax: (780) 471-7976
Hosp. tel: (780) 471-2262 |
Adults |
BRITISH COLUMBIA
Vancouver General Hospital
Janice Henrikson, Nurse Clinician
Seizure Surgery Clinic
VGH, Rm 218
Neurology Dept.
2775 Heather Street
Vancouver, British Columbia V5Z 1M9 |
Tel: (604) 875-5310
Tel: (604) 875-4403
Fax: (604) 875-5650 |
Adults |
BC Children's Hospital
Pediatric Neurology Dept. – Seizure Unit
4480 Oak Street
Vancouver, British Columbia V6H 3V4 |
Tel: (604) 875-2121
Fax: (604) 875-2292
|
Children |
MANITOBA
Health Sciences Centre
Lynn Carlson, Nurse Clinician
Epilepsy Clinic
820 Sherbrook Street
Winnipeg, Manitoba R3A 1R9 |
Tel: (204) 774-6511
Fax: (204) 787-1486 |
Adults |
Children's Centre
Rae Bradshaw – Clinic Coordinator
Paediatric Neurology
840 Sherbrook Street
Winnipeg, Manitoba R3A 1R9 |
Tel: (204) 787-4510
Fax: (204) 787-1922
Hosp. tel: (204) 787-2595 |
Children |
NEW BRUNSWICK
St-John Regional Hospital
Colleen Fry, Divisional Manager
Neurosurgery Department
St-John, New Brunswick E2L 4L2 |
Tel: (506) 648-6650
Fax: (506) 648-6649
Hosp. tel: (506) 648-6000
Hosp. fax: (506) 648-7957 |
Adults & Children |
NEWFOUNDLAND
Janeway Child Health Centre
Sharon Penney – Nurse Coordinator
Pediatric Epilepsy
Room 1J322
300 Prince Philip Dr.
St-John's, Newfoundland A1B 3V6 |
Tel: (709) 777-4172
Fax: (709) 777-4361
|
Children |
Health Sciences Centre
Janet Brown, Neurology clinic Coordinator
Neurology Department – Outpatient Clinic
300 Prince Philip Dr.
St-John's, Newfoundland A1B 3V6 |
Tel: (709) 777-7075
Tel: (709) 777-8557
Tel: (709) 777-6948
Fax: (709) 777-6656
|
Adults |
NOVA SCOTIA
IWK Health Centre
Edie Smith, RN - Neurology Nurse Clinician
5850/5980 University Avenue
PO Box 9700
Halifax, Nova Scotia B3K 6R8 |
Tel: (902) 470-8472
Fax: (902) 470-8486
Hosp. Tel: (902) 470-8888 |
Children |
Queen Elizabeth II Health Sciences Centre
Susan Rahey
Epilepsy Program
Room 3841, Halifax Infirmary
1796 Summer St
Halifax, Nova Scotia B3H 3A7 |
Tel: (902) 473-2136
Fax: (902) 473-4438
|
Adults |
ONTARIO
McMaster University Medical Centre
Louise MacRae, office Manager
Regional Epilepsy and Diagnostic Neurophysiology clinics
Neurology Department
HSC, room 4U8HSC, 4V1 Clinic
1200 Main Street West
Hamilton, Ontario L8N 3Z5 |
Tel: (905) 521-2100
Fax: (905) 521-2656 |
Adults & Children |
Kingston General Hospital
Epilepsy Clinic/Neurology
76 Stuart Street
Kingston, Ontario K7L 2V7 |
Tel: (613) 548-2342
Fax: (613) 548-6019
Hosp. tel: (613) 548-3232 |
Adults & Children |
London Health Sciences Centre
Christina Pickard -Epilepsy Research Coordinator
University Campus, Epilepsy Unit Investigation
Room 10P18
339 Windemere Road
London, Ontario N6A 5A5 |
Tel: (519) 685-8300 ext. 32870
Fax: (519) 663-3753 |
Adults & Children |
Ottawa General Hospital
Neurology Department
501 Smyth Road
Ottawa, Ontario K1H 8L6 |
Tel: (613) 737-8959
Fax: (613) 737-8857 |
Adults |
Children's Hospital of Eastern Ontario
Edgar Belanger RN, BScN
Neurology Clinic
401 Smyth Road
Ottawa, Ontario K1H 8L1 |
Tel: (613) 737-7600 ext. 2158
Fax: (613) 737-4879 |
Children |
Ottawa Civic Hospital
Jean Gauvreau – Clinic Coordinator
Department of Neurology
Room D-715
1053, Avenue Carling
Ottawa, Ontario K1Y 4E9 |
Tel: (613) 761-5353
Fax: (613) 761-5360
|
Adults |
Saint Michael's Hospital
Department of Neurology
Rondha Beck – Clinical Leader Manager
Cathy Berlingieri – Administrative Coordinator
30 Bond Street
Toronto, Ontario M5B 1W8 |
Tel: (416) 864-5759 / Beck
Tel: (416) 864-6000 ext: 2520 / Berlingieri
Fax: (416) 813-8105 |
Adults |
Hospital for Sick Children
Irene Elliott, Director
Epilepsy Clinic
555 University Avenue, Unit 60
Toronto, Ontario M5G 1X8 |
Tel: (416) 813-1500
Tel: (416) 813-6332
Fax: (416) 813-8105 |
Children |
Toronto Western Hospital
Nina Politzer, Nurse Coordinator
Epilepsy Clinic
Edith Cavell Wing 8-005
399 Bathurst Street, Fifth Floor
Toronto, Ontario M5T 2S8 |
Tel: (416) 603-5017
Lab: (416) 603-5044
Fax: (416) 603-5768 |
Adults |
QUEBEC
CHUM Pavillon Notre-Dame
Micheline Gravel, RN
Département EEG
1560 Sherbrooke est
Montréal, Québec H2L 4K8 |
Tel: (514) 890-8237
Fax: (514) 412-7554 |
Adults |
Hôpital Ste-Justine
Dominique Chartrand Coordonnateur Epilepsie Clinique
Clinique de Neurologie
3175 Côte Ste-Catherine
Montréal, Québec H3T 1C5 |
Tel: (514) 345-4894
Fax: (514) 345-4787
Hosp. Tel: (514) 345-4931 |
Children |
Montreal Children`s Hospital
Sandra Bérubé –Coordonnatrice
Neurology Department
2300, rue Tupper
Montréal, Québec H3H 1P3 |
Tel: (514) 412-4400 |
Children |
Montreal Neurological Institute and Hospital
Raula Ventzos, Coordinator Epilepsy Services
Epilepsy Clinic
3801 University
Montréal, Québec H3A 2B4 |
Tel: (514) 398-1976
Fax: (514) 398-9276
Hosp. Tel: (514) 398-6644 |
Adults |
Hopital l’Enfant Jésus
Département de Neurologie / Clinique d’Epilepsie
Pavillon L’Enfant Jésus-CHA
1401-18e Rue
Québec, Québec G1J 1Z4 |
Tel: (418) 649-0252 ext : 5980
|
Adults |
Centre Pédo-Psychiatrique (anciennement Hôpital du Sacré-Cœur)
Roger Desbiens – Coordonnateur
1, avenue du Sacré-Cœur
Québec, Québec G1N 2W1 |
Tel: (418) 529-6851 ext : 300
|
Children |
SASKATCHEWAN
Royal University Hospital
Doris Newmeyer, RN
Division of Pediatric Neurology/Neurosurgery
103 Hospital Drive
Saskatoon, Saskatchewan S7N 0W8 |
Tel: (306) 966-8115
|
Adults & Children |
Last update: December 2005
Canadian MedicAlert Foundation
MedicAlert is a non-profit organization, providing
lifetime protection and services to members, including the well-known
ID bracelet.
Applications are available in most pharmacies.
For more information, contact:
The Canadian MedicAlert Foundation
2005 Sheppard Avenue East, suite 800
Toronto, Ontario M2J 5B4
Tel: (416) 696-0267
or toll-free: 1-800-668-1507
Web: http://www.medicalert.ca |
|