Grieving mom hopes that her son’s epilepsy-related death sparks increased research funding
Donovan Charlong was a baseball loving boy with a mischievous smile and energy enough to light up his hometown of Paris, Ontario. Just eighteen days before his 12th birthday, on June 10 of this year, he died. A four-year battle with Febrile Infection Related Epilepsy Syndrome (F.I.R.E.S.) had weakened him so badly, he could no longer fight on.
FIRES is an extreme and rare form of epilepsy which affects previously heathy children. Epilepsy is known to affect one in 100 worldwide with 30% of patients, like Donovan, experiencing seizures that don’t respond to anti-seizure medication. His mother Melissa Wright decided to share the story of his illness and death, to raise awareness of the condition and to help raise funds for epilepsy research.
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