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  • Sudden Unexpected Deaths in Epilepsy Patients

    • Due to the difficulty in finding a mechanism of action for SUDEP that is common in most patients, it is difficult to assess what are the exact risk factors. A few similarities have been noted across many of SUDEP patients. These similarities include:

      • Age: late 20s, early 30s
      • Males
      • Generalised tonic-clonic seizures
      • High frequency of seizures
      • Chronic epilepsy
      • Symptomatic epilepsy (this may be the result of an underlying brain damage caused by accidents, tumours, infections, metabolic disorders)
      • Structural brain lesion
      • Post-traumatic epilepsy
      • Recent unusually stressful life event
      • Poor anti-epileptic drug compliance
      • Psychotropic drug treatment (including for anxiolytic use)
      • Alcohol

      Other possible risks with conflicting evidence:

      • Early onset epilepsy
      • Developmental delay
      • Poly-therapy of anti-epileptic drugs


      Many websites have stated that some SUDEP cases have been observed to have sub-therapeutic levels of antiepileptic drugs. This has not been proven. There are many reasons for why the levels could be sub-therapeutic. People with well-controlled seizures could have sub-therapeutic levels of AEDs and still be at low risk for SUDEP. For this reason, often measurements of post-mortem AED levels in the blood can prove misleading.

  • Epilepsy Canada

    2255B Queen St E, Suite 336 Tel: 1-877-734-0873
    Toronto, ON, M4E 1G3 Fax: 905-764-1231
    Charity Registration Number : 13117 6042 RR0001
    email: epilepsy@epilepsy.ca

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