While the exact risk factors are unknown, it does not hurt to prevent against the possible ones. Prevention does not need to involve serious life-altering changes. A few changes, including reducing alcohol consumption and recreational drug use are beneficial not only for epileptic patients but also for everyone in general. Small changes such as this, along with support from family, friends, and physicians can help to reduce the chances of SUDEP.
It must be noted that: these precautions may not avoid SUDEP in all cases, however they may help to prevent it in some others. It is best to be cautious, even if your physician claims the likelihood of SUDEP to be rare.
Diagnosis of epilepsy should be confirmed. (If you do not feel comfortable with the diagnosis, seek a second opinion.) It is best to see a specialist who deals with epileptic patients. Your family physician should be able to refer you to one. Once confirmed, the specialist/physician will prescribe treatments appropriate for your type of epilepsy. Each patient is different. Your dosage/frequency may be different than a friend on the same medication. Well-controlled seizures is one key to preventing SUDEP.
- A management plan should be established ensuring regular review of seizure control, accuracy of diagnosis, medication, side effects and impact on lifestyle. Your physician/specialist should review this list with you to ensure you are getting the best possible treatment.
- Trigger factors for seizures should be identified and avoided.
- Adherence with medication is important and avoiding sudden changes in the taking of medication.
- Reduce/avoid alcohol and recreational drugs. If you must drink, limit how much you consume. Binge drinking (even for people without illnesses) is never a safe thing to do.
- Before deciding to become pregnant, women should consult their physician/specialist for more information regarding seizures during pregnancy as well as how their AEDs will affect the developing foetus.
- Where seizures are nocturnal - it may be preferable to have a futon or other bed, which is low on the ground. A solid foam pillow with air holes may be advised, although these have not been tested.
- Do your family and friends know what to do if you have a seizure? Make sure family and care givers are informed of what to do during and following a seizure. In particular, care givers should be advised to stay with a person for 15-20 minutes after the seizure to ensure they are breathing easily and to watch that they are not turning blue. An ambulance should be called if the seizure lasts more than five minutes or they are unduly concerned.
- Where risk factors of SUDEP are present carers should have a basic knowledge of resuscitation techniques
The benefits of healthy living including regular sleep and diet and reduction of stress can make a serious impact on the quality of life of an epileptic patient.
While a cure is still unknown, these simple preventative measures can help epileptic patients live full lives. The above tips are hardly restricting and are beneficial for not only people with epilepsy but also everyone in general.