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  • Sudden Unexpected Deaths in Epilepsy Patients

    • Researchers are looking into different areas that may be involved in the mechanism of SUDEP. While there is no definite source, they have noticed some similarities between patients.

      Current research is focusing on several areas:

      1. Case control studies
      2. Pathophysiological research

      Case control studies are helping researchers to gather information about how many deaths are attributed to SUDEP, the events preceding the death, as well as any other similarities between patients. The pathophysiological research involves analysis of organs after death and animal model studies. Recent studies are focusing on pulmonary and cardiac influences on SUDEP. It is currently believed that the causes of SUDEP are multi-factoral (the result of many different mechanisms working together).

      The result: the exact event triggering SUDEP may vary from patient to patient.


      Acknowledgements:

      Dr. Elizabeth Donner, Hospital for Sick Children, Ontario

      Dr. Neelan Pillay, University of Calgary, Foothills Medical Centre, Calgary Alberta

      References:

      Opeskin K, Berkovic SF. Risk factors for sudden unexpected death in epilepsy: a controlled prospective study based on coroners cases. Seizure. 2003 Oct;12(7):456-464.

      Donner EJ, Smith CR, Snead OC III. Sudden unexplained death in children with epilepsy. Neurology. 2001 Aug 14;57(3):430-4.

      Epilepsy: Safety, Excess Mortality, and Sudden Death.
      Epilepsia. 2003 Sep;44 Suppl 6:19-20. No abstract available.

      Annegers JF, Coan SP. SUDEP: overview of definitions and review of incidence data.
      Seizure. 1999 Sep;8(6):347-52. Review.

      Kloster R, Engelskjon T. Sudden unexpected death in epilepsy (SUDEP): a clinical perspective and a search for risk factors. J Neurol Neurosurg Psychiatry. 1999 Oct;67(4):439-44.

      Nilsson L, Farahmand BY, Persson PG, Thiblin I, Tomson T. Risk factors for sudden unexpected death in epilepsy: a case-control study. Lancet. 1999 Mar 13;353(9156):888-93.

      Langan Y, Nashef L, Sander JW. Sudden unexpected death in epilepsy: a series of witnessed deaths. J Neurol Neurosurg Psychiatry. 2000 Feb;68(2):211-3.

      Nilsson L, Bergman U, Diwan V, Farahmand BY, Persson PG, Tomson T. Antiepileptic drug therapy and its management in sudden unexpected death in epilepsy: a case-control study. Epilepsia. 2001 May;42(5):667-73.

      Lhatoo SD, Sander JW. Sudden unexpected death in epilepsy. Hong Kong Med J. 2002 Oct;8(5):354-8. Review.

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